I have signed up to be a guinea pig for UCSD. It was in my best interest to start my treatment within the ISPY 2 trial. I will be taking an investigative drug as well as the normal standard of care. My investigational drug is called Pembro, or at least that is the short version. I don't remember the entire name. It is currently being used in Europe and the US for skin cancer. They are giving it to me to see if it helps me too. God knows, I might grow a horn on my head after taking it, but hopefully not. I am very open to clinical trials in the hopes it will give information for people to find a better way of treatment or cure. I have a daughter to think about!
I am also in the ACT trial (Tracking Physical Activity Throughout Chemotherapy for Brest Cancer). They issued me a FitBit with Heart Rate monitor. They are going to track my steps one week before chemo then all the way through and up to 6 months after. I get to keep the Fitbit so Layne wants to use my old one and start challenging me. Yikes!
Lastly I am also in the Aging Cells after Chemotherapy for Breast Cancer Patients. I had to do some diagnostic tests as well some cognitive tests and a full body scan for bone density. They will check me again once I am done with my 12 weeks of Taxol to see if there is any deterioration. Sometimes people end up with Osteoporosis after chemotherapy. Fun! Ugh.
Feeling good!! Oscar and I went on a 3.5 mile walk this morning. I slept well last night and have a healthy appetite today. Fingers crossed this lasts!
My first chemo treatment! The toxic poison is hooked into my port. I will have Taxol and an investigational drug once a week for the next 12 weeks. After that, I go on the heavy chemo. The whole process from start to finish was about 5.5 hours. I have to go in before each infusion and get my blood checked to make sure I can handle the drugs. One down, 11 to go!
The chair was cozy and my nurse brought me a nice, warm blanket to get comfy. I had a fabulous garden window seat which made me happy.
Apparently I am toxic now... or at least for the next 72 hours. The nurse has instructed me to make sure I close the toilet lid and flush two times or use a different bathroom than everyone else in the house. Apparently any secretions from me can be hazardous. Yikes!
Wow! I just found out that the period I am having will be my last! Thank goodness I am done having kids. I am actually thrilled about this news. The chemo drugs put my ovaries to sleep. I hope I don't start getting night sweats and hot flashes but still happy to toss all of those super tampons. Yippie!!
I bought a wig! It's synthetic hair attached to a ball cap. I might go back and get the shorter one with the black cap as well (seen below). I figure I can throw this on when I drop off and pick up kids from school. I think it looks pretty good, right?
I tried on a full wig but did not like it. Of course the color is all wrong, but I am worried about the full wigs. I don't think I have found the right one yet!
I had my port surgery today. This is an enormous titanium vessel with silicon on the top. The tube is connected to a main artery. It is surgically placed in my chest so that I can have all blood draws and chemo infusions done from one place. It looks like I have a bug under my skin. I don't like how it feels when I am driving and the seat belt touches it. I need to make a cozy wrap for that. Other than that, I'm starting to get used to it.
Ella told me she was going to cut her hair to donate to my wig. That was so unbelievably sweet. My little one donated 9.5 inches. Though it won't go into my exact wig, she doesn't need to know that. What a special gift for her mommy. I am so proud of her! plus i am thankful not to try and brush that mop anymore ;)
This is human hair! Not the right color, but super soft. I have to admit though, it was a bit creepy wearing this for two reasons, it is someone else's hair and it's not my hair. Thanks to my friend, Jill, for coming with me!
I didn't buy this, but it did look pretty good, but VERY pricey!
Hi! I'm Amy. I was diagnosed at 44 with